Friday, February 19, 2010
Tina and I were approached last month by a representative of the Marc Apodeca Jr. Children's Glioma CancerFoundation to participate in a study. The study is a joint venture between the foundation and Brigham Young University to examine the effects of a DIPG on the family as a whole, and Tina and I readily agreed to participate. Phase I involves filling out a detailed intake sheet which will be followed by several lengthy interviews and ultimately sharing anything the facilitators believe will gauge how Peter's illness and death impacted us. We plan on spending some time this weekend going over the intake sheet, and I'm sure that we will be referring frequently to the journal we kept so religiously over the course of his illness as well as in the aftermath of his death. Exploring the feelings associated with the Peter's death took a great deal of "heavy lifting", yet together we did it time and time again; I don't anticipate that reviewing our feelings for this study will be as difficult as it was initially, but I'm sure we will relive some very poignant moments.